EB is a rare genetic condition that makes skin so fragile that it can tear or blister at the slightest touch. Kids born with the disease are called “Butterfly Children”, because their skin is as fragile as a butterfly wing.
The Iranian ambassador, in a tweet posted on Monday, said that a Swedish firm that produces medical supplies continues to refuse selling bandages to Iran for its butterfly children "under the pretext of cruel US sanctions".
The post continues to say that these innocent angels are suffering and dying on a daily basis in front of the eyes of those claiming to be defending human rights. “Isn’t this the gross violation of children’s rights and a crime against humanity?”
Iran is facing harsh sanctions after the US withdrew from the 2015 nuclear deal and launched its so-called maximum pressure campaign against the Islamic Republic.
The campaign also enforces secondary sanctions that target foreign companies in case that their business with Iran violates measures against the Islamic Republic.
Iranian authorities have time and again described the sanctions as cruel as they impact the everyday life of the ordinary people.
The authorities have on various occasions said that the US sanctions have made it difficult the import of medicines and medical supplies, because foreign companies are afraid of America’s punitive measures.
Earlier in 2022, Alena Douhan, UN Special Rapporteur on the Negative Impact of the Unilateral Coercive Measures visited Iran.
At a press conference she raised the issue of butterfly children in Iran, saying that, based on the information she had received, there was no way to import required bandages and medicines for them, with companies citing fear of US sanctions.
She said that such moves were in violation of human rights.
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