Masoumifar wrote on his Twitter account that a Swedish firm producing medical equipment continues to decline to sell dressing needed for EB children in Iran under the excuse of cruel sanctions imposed by the United States.
The innocent angels are suffering and losing their lives from the disease every day in front of the eyes of those who claim to be defending human rights, he added, warning that such an attitude is a violation of the rights of children and a crime against humanity.
Wound care is the cornerstone of treatment for patients with epidermolysis bullosa.
In June 2021, the president of the House of Patients with Epidermolysis Bullosa said that with the unilateral withdrawal of the United States from the Joint Comprehensive Plan of Action (JCPOA), the sanctions were suddenly increased, and from May 2018 to May 2019, 15 patients with EB died due to lack of dressings.
The US is lying when it ensures that its sanctions do not include medicines, insisted Hamid-Reza Hashemi, noting that the US measures do not coincide with its ostentation that it is the cradle of human rights and technology.
During a visit to Iran in May, United Nation’s Special Rapporteur on unilateral coercive measures Alena Douhan said in a press conference that anti-Iran actions are a gross violation of human rights.
Douhan said she was told that there was no way to import the dressings and medicines that these children needed, saying that companies had said that they were afraid of being subject to US sanctions.
The Islamic Republic of Iran pursues the case indicting 30 US officials and entities for illegal sanctions that are threatening the lives of hundreds of EB patients in the Islamic country.
295 EB patients and their families filed a lawsuit, spokesman for the Iranian Judiciary Zabihollah Khodaeian said, noting that the court was held in this regard in Tehran on November 3, 2021, and the case is being investigated and a verdict will be issued as soon as the investigation is finalized.
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