Jul 27, 2014, 5:24 PM
News Code: 2732558
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New plans for hemophilia patients

Tehran, July 27, IRNA -- The Health Ministry has devised new plans to improve the condition of hemophilia patients, said an expert with the ministry.

Monday edition of the English language newspaper Iran Daily quoted Dr. Razieh Hantoushzadeh as saying intra-articular bleeding is among the serious problems faced by children suffering from hemophilia.

“The ministry seeks to implement the plan to prevent bleeding in children aged under 15 years who suffer from hemophilia,” she said. Drugs to treat them have been imported based on an agreement signed with the Health Ministry’s Department for Medicines, she noted.

She noted that medical universities are expected to send the list of children with hemophilia to the Health Ministry, adding required medicines will be sent to the universities within 48 hours after receiving the list.

The official reiterated that the names of hemophilia patients should have been registered earlier in the Health Ministry’s system.

“Some 8,000 hemophilia patients have so far been listed,” she said.

Hantoushzadeh further stated that efforts are underway to establish a treatment protocol for patients with hemophilia A and B with inhibitors.

She said steps have been taken to procure the medicines for 50 hemophilia patients in the current Iranian year (started March 21).

In hemophilia A and B patients being treated with anti-hemophilic factor products, the development of inhibitors is a growing concern. Inhibitors are the result of an immune response to the introduction of foreign factor proteins. Mistaking the factor proteins as infectious, the immune system destroys the proteins needed to treat a bleed, resulting in the infusion being ineffective, the bleeding continuing, and the factor being wasted. Inhibitors cannot be prevented and may occur at anytime. The treatment of an inhibitor is costly, time consuming, and demanding.